Barth Syndrome Foundation of Canada

News & Events

2021 BSF Research Grant Program

August 24, 2020 Since 2002, the Barth Syndrome Foundation, Inc. and its affiliates have been awarding research grants. The Barth Syndrome Foundation of Canada have participated in their Research Grant program since 2006, and have contributed towards 15 individual grants for a total of over $364,000 US (see here for details). Together with BSF and the other affiliates (UK, France and Italy), 115

August 24th, 2020|

New Virtual Scientific and Medical Symposium 2020

JUNE 12, 2020 The Barth Syndrome Foundation is proud to convene its first-ever Virtual Scientific & Medical Symposium on July 23-24, 2020. This online meeting is an opportunity to: Engage with scientific and clinical leaders in the Barth syndrome space Identify key research questions facing the Barth syndrome field Discuss recent advancements in Barth syndrome cardiac, pathophysiology and neutropenia research. For more information about

June 12th, 2020|

New Research Grant Awarded 2020

March 30, 2020 Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients. Robin E. Duncan, PhD Associate Professor, University of Waterloo, Waterloo, ON, Canada Investigation of a new nutraceutical for treatment of Barth Syndrome This research is currently on-going. *Funding for this award was provided by Barth Syndrome UK, and Barth Syndrome Foundation

March 30th, 2020|

Barth Syndrome Newsletter – March 2020

March 1, 2020 Welcome to 2020! Another year has passed by very quickly and I would like to update you on some of the Barth Syndrome Foundation of Canada’s (BSFCa) accomplishments in 2019. One of our main goals is to be able to contribute funds and participate in research being done into causes and potential treatment for Barth syndrome. We have been very

March 1st, 2020|

2019 Request for Research Proposals

OCTOBER 2, 2019 The Barth Syndrome Foundation, Inc. (BSF) and its international affiliates announce the availability of funding for basic science and clinical research on the natural history, biochemical basis, and treatment of Barth syndrome. There are two categories: IDEA grants for 1-2 years and DEVELOPMENT grants for 2-3 years with budgetary maximums of US $50,000 or $100,000, respectively. BSF's Research Grant Program allows

October 2nd, 2019|

June 2019 Presentation on Barth syndrome

OCTOBER 2, 2019 On June 18th, Christiane Hope and Susan Hone gave a 40-minute presentation on Barth syndrome entitled From Tears and Fears to Hope and Advocacy at the Canadian Human and Statistical Genetics Meeting/GE3LS HSPR* Conference 2019 in Montebello, Quebec. We were invited to speak by Chris McMaster, PhD, FCAHS, Scientific Director, Canadian Institute of Health Research (CIHR) Institute of Genetics and Professor

October 2nd, 2019|

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