News & Events
Barth Syndrome Newsletter – November 2021
November 1, 2021 As 2021 quickly comes to an end, I am ready to see if 2022 will bring us some relief from this global pandemic. Living with someone affected with Barth syndrome, who can be immune compromised at times, has definitely put me on high alert for almost two years. Although we have not been able to get together in person, our
Launch of the Swag Store
JULY 6, 2021 Design X Promotions has helped us create a special Barth store which gives us the chance to wear and show our logo with pride and will return a portion of all sales as a donation to the Foundation, which will help us to continue in our work to enhance the lives and outcomes of Canadian individuals and families affected by
Virtual 5K Run 2021
Over $9000 raised!!! Thank you to everyone who joined us to make this years 5K event such a success. Despite being spread around the world, our Barth community can feel the love. Your support gives us HOPE for a better future for those affected by this devastating disease. JUNE 15, 2021 Our virtual 5K event can be run or walked
New Research Grant Awarded 2021
May 13, 2021 Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients. Jason Moffat, PhD Professor, University of Toronto, Toronto, ON, Canada Surveying TAZ genetic interactions and mutational landscape in human cells This research is currently on-going. *Funding for this award was provided by Barth Syndrome UK, and Barth Syndrome Foundation of
NOVEL CORONAVIRUS 2019 (COVID-19) Precautions
December 21, 2020 Information from BSF, Inc. Resource page from the Government of Canada: Coronavirus disease (COVID-19) Families and friends in our global Barth community, During this very challenging time as the world reacts to the COVID-19 pandemic, we at BSF are working diligently to support our families and individuals with Barth syndrome. See the following important links for further information: Resource page
2021 BSF Research Grant Program
August 24, 2020 Since 2002, the Barth Syndrome Foundation, Inc. and its affiliates have been awarding research grants. The Barth Syndrome Foundation of Canada have participated in their Research Grant program since 2006, and have contributed towards 15 individual grants for a total of over $364,000 US (see here for details). Together with BSF and the other affiliates (UK, France and Italy), 115
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