December 21, 2020

Information from BSF, Inc.

Resource page from the Government of Canada: Coronavirus disease (COVID-19)

Families and friends in our global Barth community,

During this very challenging time as the world reacts to the COVID-19 pandemic, we at BSF are working diligently to support our families and individuals with Barth syndrome. See the following important links for further information:

  • Resource page from BSF: COVID-19 Information, Related Vaccine information and Precautions.

BSF continues to update the link above, so be sure to check the growing list of Additional Resources.

BSF has also added a Youtube video (see below) from Richard E D’Alli, M.D., MEd, ScM, Associate Professor of Psychiatry in the Department of Pediatrics, University of Florida with tips for recognizing anxiety in a child and strategies: Stress and COVID-19.

Also, check out Facebook for both BSFCa and BSF.

BSF is now hosting a series of open, weekly support groups and yoga online in response to the COVID-19 virus outbreak. Check out the BSF Support Group Page for more information and available groups.

If you need more information, please email Shelley Bowen, Director of Family Services.

BSF has made the decision to postpone the 2020 Conference and has rescheduled it for July 19 – 24, 2021. More information will be made available as soon as possible. Check on our International Scientific, Medical & Family Conference page for more information and links.

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