Families and friends in our global Barth community,
During this very challenging time as the world reacts to the COVID-19 pandemic, we at BSF are working diligently to support our families and individuals with Barth syndrome. See the following important links for further information:
Resource page from BSF: COVID-19 Information, Related Vaccine information and Precautions.
BSF continues to update the link above, so be sure to check the growing list of Additional Resources.
BSF has also added a Youtube video (see below) from Richard E D’Alli, M.D., MEd, ScM, Associate Professor of Psychiatry in the Department of Pediatrics, University of Florida with tips for recognizing anxiety in a child and strategies: Stress and COVID-19.
BSF has made the decision to postpone the 2020 Conference and has rescheduled it for July 19 – 24, 2021. More information will be made available as soon as possible. Check on our International Scientific, Medical & Family Conference page for more information and links.