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Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome.

Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome.

Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome.

BARTH INDIVIDUALS & FAMILIES

Our program includes information and resources as well as advocacy assistance for families.

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HEALTHCARE
PROVIDERS & RESEARCHERS

Information related to diagnosis, treatment, and knowledge for clinician review.

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BARTH SYNDROME ONLINE STORE

There is no minimum order, and 20% of each purchase becomes a donation to BSFCa.

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BSF CANADA
NEWS & EVENTS

Keep up-to-date on relevant news that impacts the Barth syndrome community at-large.

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WELCOME TO THE

Barth Syndrome Foundation of Canada

When you or your loved one is first diagnosed with Barth syndrome (BTHS), you can feel overwhelmed. You may not even have heard of Barth syndrome until now. Learning all you can is a major step toward taking charge of your illness — and your life.

These pages are intended to help you understand more about the diagnosis and treatment of Barth syndrome, and its impact on the day-to-day lives of patients and their families. The better informed you are about Barth syndrome, the more equipped you’ll be to participate as an active member of your healthcare team.

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WHAT IS

Barth Syndrome?

Barth syndrome is an ultra-rare, life-threatening, genetic disorder primarily affecting males all over the world. Symptoms in varying degrees of severity can include:

WHAT IS

Barth Syndrome?

Barth syndrome is an ultra-rare, life-threatening, genetic disorder primarily affecting males all over the world. Symptoms in varying degrees of severity can include:

NEWSLETTERS & STORIES

From the Foundation

2022 Request for Research Proposals

Barth Syndrome Newsletter – November 2021

Donate please!

The Barth Syndrome Foundation of Canada is a completely volunteer, charitable foundation. We fund critical research and provide support and information to affected individuals, families, and medical professionals.

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