Virtual Meetups for Individuals Diagnosed with Barth Syndrome
Bi-weekly on-line meet-ups for affected individuals 18 and older occur every second Thursday at 5:00 pm ET. They are a great opportunity for teens and adults diagnosed with Barth syndrome to connect with one another. Join us for a lively, agenda free conversation.
Contact us for meeting ID information and password information
The Barth Syndrome Foundation, Sudden Arrhythmia Death Syndromes (SADS) Foundation, Children’s Cardiomyopathy Foundation and National Neutropenia Network are a part of Project Sunshine Teleplay. This is open to individuals diagnosed with Barth syndrome and their siblings and young immediate relatives. This is available for our 5 – 18 years old youth, giving them an opportunity to bond with others who are in a similar circumstance through fun.
Contact us for more information