About the Foundation
We are a nation-wide, entirely volunteer-based, charitable organization (registered charity number 86102 2002 RR0001) that works to find treatments, causes and a cure for Barth syndrome (BTHS). While independent, we are an affiliate of the Barth Syndrome Foundation, Inc. (BSF), and together we share a vision for a world in which not one more person shall suffer or perish from Barth syndrome.
Barth Syndrome Foundation of Canada Team
Our Board of Directors is made up of individuals from across the country. Directors serve two-year terms, and are voted in at our Annual General Meeting in rotation. The Board of Directors is the legal authority for the Barth Syndrome Foundation of Canada (BSFCa). As a member of the Board, a Director acts in a position of trust for the BSFCa community and is responsible for the effective governance of the organization.
- Directors provide the leadership for the BSFCa, and support the Foundation’s mission of “Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome“.
- All board members are committed to the work of the BSFCa, have knowledge about Barth syndrome, and serve on different committees.
- Along with assisting families and individuals affected by Barth syndrome, Directors respond to inquires from professionals, organizations and students.
The Board is ably assisted by additional executive members, board advisors, as well as numerous volunteers who provide their time and talents in various methods.
We appreciate all our
We are very proud to be able to say that the Barth Syndrome Foundation of Canada is run entirely by volunteers. From the Board of Directors and Executive to the envelope stuffers, everyone gives that most valuable of all commodities—their time.
We are extremely grateful to everyone who helps us out. Our volunteers have gone above and beyond to help us carry out our programs, and assist us in all areas of them. They have great ideas and suggestions, and offer their talents spontaneously and eagerly, for which we are thankful.
The jobs our volunteers perform include (but are not limited to): internet research, newsletter editing and production, knitting, phoning, surveying, collating, singing, golfing, proof reading, fundraising, dancing, speaking to people in the medical profession, woodworking, collecting items, bookkeeping, envelope stuffing, curling, graphic drawing, and so on.
We are always looking for new, enthusiastic volunteers, if you have would like information on how to be a volunteer for the Barth Syndrome Foundation of Canada, and want to be a part of our team, please contact us. We have both short-term and long-term jobs available.