News & Events
New Research Grant Awarded 2023
May 1, 2023 Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients here, including Kate Schroder, PhD, The University of Queensland, Australia Elucidating Cardiolipin Immune Dysfunction in Barth Syndrome This research is currently on-going. *Funding for this award was provided by Barth Syndrome Foundation and Barth Syndrome Foundation of Canada For more
Barth Syndrome Newsletter – November 2022
November 3, 2022 I hope this newsletter finds everyone well and getting back to their previous lifestyles before the global pandemic. Although the pandemic is not yet over, the world is adjusting to living with it and the fear is not as heightened as it was last year at this time. We still need to be cautious as Barth syndrome can cause individuals
2023 BSF Research Grant Program
September 04, 2022 Since 2002, the Barth Syndrome Foundation, Inc. and its affiliates have been awarding research grants. The Barth Syndrome Foundation of Canada have participated in their Research Grant program since 2006, and have contributed towards 17 individual grants for a total of over $400,000 US (see here for details). Together with BSF and the other affiliates (UK, France and Italy), 115
2022 Barth Syndrome Virtual Symposium–Call for Speaker and Poster Abstracts
BSF is seeking abstracts for the 2022 Scientific & Medical Virtual Symposium. Key dates and more information can be found at BSF.
Virtual 5K Run 2022
Our virtual 5K event can be run or walked from any location you choose at any time you choose during the month of May. There is no official start time, nor do you have to drive to a specific location. You do not need to deal with traffic, parking or poor weather. Whenever your schedule permits it, put on your walking shoes
Webinar: The Guide to Patient Involvement in Rare Disease Therapy Development
JANUARY 19, 2022 On January 27th, the EveryLife Foundation for Rare Diseases, in partnership with Biotechnology Innovation Organization (BIO), National Health Council, and the Pharmaceutical Research and Manufacturers of America (PhRMA), will introduce a transformational resource, the “Guide to Patient Involvement in Rare Disease Therapy Development.” Join us for this special webinar to learn more about this new resource and how it can further
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