Resources for Families

(UK/France Affiliates)

Our affiliate in France has created a number of important resources for children and teenagers affected by Barth syndrome:

A Little Book for Children

Petit Livret

fyrir börn

A Little Book for Teenagers

Our affiliate in the United Kingdom, in conjunction with the Bristol NHS Barth Syndrome Service has also created several important resources for affected individuals:

Living with Barth Syndrome

Healthy Eating For Teenagers

Cardiomyopathy The Facts


Growing up with
Barth Syndrome

Donate please!

The Barth Syndrome Foundation of Canada is a completely volunteer, charitable foundation. We fund critical research and provide support and information to affected individuals, families, and medical professionals.