Privacy Policy

The Barth Syndrome Foundation of Canada (BSFCa) is committed to protecting your privacy and maintaining the confidentiality of your Personal Information.

BSFCa collects personal information when you:

  • Make a donation online;
  • Subscribe to a mailing list or newsletter;
  • Register for an event;
  • Contact us with a request or a comment.

Personal information collected may include:

  • Your name;
  • Contact information, such as your home address, telephone number and email address;
  • Your credit card information;
  • Your communication preferences;
  • Demographic information such as your age, gender or preferred official language.

If you sign up for our newsletter, we use your email and/or home address, as applicable, to send you the newsletter and other information you have requested. When you email us with a request or a comment, you may be asked for information that identifies you, such as your name, address and telephone number, to help us promptly answer your question. We may retain this information to assist you in the future. We also may use your feedback, suggestions and comments to monitor and/or improve our Website.

BSFCa Website logs information such as website IP addresses and other related information such as page requests, browser types, operating systems and average time spent on our Website. This information is used to analyze and understand site usage, and to monitor our Website in order to provide better service for users.

BSFCa will not disclose, rent, sell or otherwise transfer your personal information without your consent, except as otherwise set out in this Privacy Policy or as otherwise required or permitted by law. We maintain administrative, technical and physical safeguards in an effort to protect against unauthorized access, use, modification and disclosure of personal information in our custody and control.

You have the right to access and/or correct any inaccuracies in the personal information we have about you in our records. To protect your privacy, we will take reasonable steps to help verify your identity before granting access or making corrections to your personal information.

If you have any questions or concerns about our privacy policy please contact:

Donate please!

The Barth Syndrome Foundation of Canada is a completely volunteer, charitable foundation. We fund critical research and provide support and information to affected individuals, families, and medical professionals.