Barth Syndrome Foundation of Canada

News & Events

June 2019 Presentation on Barth syndrome

OCTOBER 2, 2019 On June 18th, Christiane Hope and Susan Hone gave a 40-minute presentation on Barth syndrome entitled From Tears and Fears to Hope and Advocacy at the Canadian Human and Statistical Genetics Meeting/GE3LS HSPR* Conference 2019 in Montebello, Quebec. We were invited to speak by Chris McMaster, PhD, FCAHS, Scientific Director, Canadian Institute of Health Research (CIHR) Institute of Genetics and Professor

October 2nd, 2019|

New Research Grant Awarded 2019

March 19, 2019 Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients. Christopher Y. Park, MD, PhD Associate Professor, New York University School of Medicine, New York, NY Characterization of hematopoietic stem and progenitor cells in Barth syndrome This research is currently on-going. *Funding for this award was provided by Barth Syndrome France,

March 19th, 2019|

Barth Syndrome Newsletter – November 2018

President’s Report—Fifteen years of devotion and commitmentby Susan Hone It is that time again when we take a moment to sit back and reflect on events and proceedings throughout the past year -- what worked, what could be improved upon, and where to go from here. This November 20th we celebrate Barth Syndrome Foundation of Canada’s (BSFCa) 15th Anniversary. This is quite an

November 23rd, 2018|

New Research Grant Awarded 2018

April 11, 2018Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients.Richard Epand, PhDProfessor, McMaster University, Hamilton, Ontario, CanadaThe cause and consequences of plasmalogen depletion in Barth syndrome This research is currently on-going.Associated publications to date:Kimura T, Kimura AK, Ren M, Monteiro V, Xu Y, Berno B, Schlame M, Epand RM. Plasmalogen loss caused

April 11th, 2018|

BSFCa assists funding 2016 Research Grant Cycle

MARCH 29, 2017 The Barth Syndrome Foundation of Canada was happy to participate in this year's Barth Syndrome Foundation annual research grant award meeting, and are pleased to announce that funds are being put towards a grant looking into potential gene therapy for Barth syndrome. Return to News Listings

March 29th, 2017|

BSFCa receives TWO Matching Grant donations for Giving Tuesday

NOVEMBER 16, 2016 The Barth Syndrome Foundation of Canada is the grateful recipient of TWO matching grant donations for Giving Tuesday. The first $5,500.00 raised will be doubled! We are very fortunate to have these dedicated anonymous donors and are confident that we will reach and surpass their challenge. To make a donation click here. Return to News Listings

November 16th, 2016|

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