News & Events
2019 Request for Research Proposals
OCTOBER 2, 2019 The Barth Syndrome Foundation, Inc. (BSF) and its international affiliates announce the availability of funding for basic science and clinical research on the natural history, biochemical basis, and treatment of Barth syndrome. There are two categories: IDEA grants for 1-2 years and DEVELOPMENT grants for 2-3 years with budgetary maximums of US $50,000 or $100,000, respectively. BSF's Research Grant Program allows
June 2019 Presentation on Barth syndrome
OCTOBER 2, 2019 On June 18th, Christiane Hope and Susan Hone gave a 40-minute presentation on Barth syndrome entitled From Tears and Fears to Hope and Advocacy at the Canadian Human and Statistical Genetics Meeting/GE3LS HSPR* Conference 2019 in Montebello, Quebec. We were invited to speak by Chris McMaster, PhD, FCAHS, Scientific Director, Canadian Institute of Health Research (CIHR) Institute of Genetics and Professor
New Research Grant Awarded 2019
March 19, 2019 Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients. Christopher Y. Park, MD, PhD Associate Professor, New York University School of Medicine, New York, NY Characterization of hematopoietic stem and progenitor cells in Barth syndrome This research is currently on-going. *Funding for this award was provided by Barth Syndrome France,
Barth Syndrome Newsletter – November 2018
President’s Report—Fifteen years of devotion and commitmentby Susan Hone It is that time again when we take a moment to sit back and reflect on events and proceedings throughout the past year -- what worked, what could be improved upon, and where to go from here. This November 20th we celebrate Barth Syndrome Foundation of Canada’s (BSFCa) 15th Anniversary. This is quite an
New Research Grant Awarded 2018
April 11, 2018Along with the Barth Syndrome Foundation and its international affiliates, we are happy to announce this year's research grant recipients.Richard Epand, PhDProfessor, McMaster University, Hamilton, Ontario, CanadaThe cause and consequences of plasmalogen depletion in Barth syndrome This research is currently on-going.Associated publications to date:Kimura T, Kimura AK, Ren M, Monteiro V, Xu Y, Berno B, Schlame M, Epand RM. Plasmalogen loss caused
BSFCa assists funding 2016 Research Grant Cycle
MARCH 29, 2017 The Barth Syndrome Foundation of Canada was happy to participate in this year's Barth Syndrome Foundation annual research grant award meeting, and are pleased to announce that funds are being put towards a grant looking into potential gene therapy for Barth syndrome. Return to News Listings
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