It is important to keep everyone–doctors, researchers, families, affected individuals as up-to-date as possible regarding programs and research sponsored by ourselves, our parent foundation, the Barth Syndrome Foundation, Inc., and other world-wide affiliates.
Along with this website, a bi-yearly newsletter (Barth Syndrome Journal) is published by BSF Inc., to which we and the other affiliates submit articles. In order to keep our donors and Canadian families engaged and current about Canadian specific activities, we also have our own yearly bulletin. Contact us if you would like to receive a hard copy, of either publication, please let us know, and we would be happy to mail them to you.
Barth Syndrome Newsletter – September 2014
President’s Reportby Lynn Elwood As this has been a Barth Syndrome Foundation (BSF) conference year, I will focus much of my report on that important week. Barth Syndrome Foundation of Canada (BSFCa) was once again very involved in the conference. Lois was part of the steering committee, coordinated the travel and accommodations and logistics for the Science and Medicine presenters and worked at the
Barth Syndrome Newsletter – September 2013
Ten Years in the Makingby Lynn Elwood & Chris Hope At times, it is hard to believe that the Barth Syndrome Foundation of Canada (BSFCa) has been operating for ten years. Knowing that it would not be an easy job, several Canadian families joined together during the 2002 Barth Syndrome International conference and decided to form a Canadian affiliate. We learned a considerable amount
Barth Syndrome Newsletter – September 2012
Relections from the Presidentby Lynn Elwood Looking back on the accomplishments of 2011 and early 2012, a lot has been done within Canada. We have held a number of successful fundraisers including the Golf Tournament as well as individual events such as Boogie for Barth, a 50th Birthday bash and a Poinsettia sale. We have received a number of donations and expanded the amount
Barth Syndrome Newsletter – December 2011
Relections from the Presidentby Lynn Elwood Whenever I sit down to do one of these semi-annual reports, I am reminded just how much work gets done by this organization. We are very lucky to have such a dedicated and efficient group of volunteers working on behalf of all individuals affected by Barth syndrome. We cannot thank them enough for all their hard work. In
Barth Syndrome Newsletter – March 2009
Relections from the Presidentby Lynn Elwood For this report we agreed to focus on the scientific and medical grants Barth Syndrome Foundation of Canada has funded. This year marks the 4th grant that we have been involved in funding. Since this is a significant portion of our expenditures and a very exciting part of our program, we wanted to provide a little more background.
Subscribe to our periodic email newsletter to stay up to date with the latest news, articles and stories from the Barth Syndrome Foundation of Canada:
Attend our next Event!
Are you looking for events to attend to learn more about Barth Syndrome?