Newsletters

President’s Reportby Lynn Elwood As this has been a Barth Syndrome Foundation (BSF) conference year, I will focus much of my report on that important week. Barth Syndrome Foundation of Canada (BSFCa) was once again very involved in the conference. Lois was part of the steering committee, coordinated the travel and accommodations and logistics for the Science and Medicine presenters and worked at the

Ten Years in the Makingby Lynn Elwood & Chris Hope At times, it is hard to believe that the Barth Syndrome Foundation of Canada (BSFCa) has been operating for ten years. Knowing that it would not be an easy job, several Canadian families joined together during the 2002 Barth Syndrome International conference and decided to form a Canadian affiliate. We learned a considerable amount

Relections from the Presidentby Lynn Elwood Looking back on the accomplishments of 2011 and early 2012, a lot has been done within Canada. We have held a number of successful fundraisers including the Golf Tournament as well as individual events such as Boogie for Barth, a 50th Birthday bash and a Poinsettia sale. We have received a number of donations and expanded the amount

Relections from the Presidentby Lynn Elwood Whenever I sit down to do one of these semi-annual reports, I am reminded just how much work gets done by this organization. We are very lucky to have such a dedicated and efficient group of volunteers working on behalf of all individuals affected by Barth syndrome. We cannot thank them enough for all their hard work. In

Relections from the Presidentby Lynn Elwood For this report we agreed to focus on the scientific and medical grants Barth Syndrome Foundation of Canada has funded. This year marks the 4th grant that we have been involved in funding. Since this is a significant portion of our expenditures and a very exciting part of our program, we wanted to provide a little more background.