News & Events
Barth Syndrome Newsletter – November 2016
President’s Reportby Susan Hone It seems like it was a long time ago but in reality, it has only been four months since my family was fortunate enough to attend the 8th Barth Syndrome International Scientific, Medical and Family Conference in Florida. Every time I attend a conference I am in awe of what this group of families, scientists, doctors, therapists and others in
2015 Research Grant Cycle Brings Excitement
MARCH 28, 2016 BSF of Canada is thrilled to announce that we once again took part in the Barth Syndrome Foundation, Inc. research grant cycle, and are putting funds toward this important aspect of our programs. There were many proposals to choose from, and BSFCa is honoured to be able to support this research which will directly lead us to treatments and a cure.Click
Barth Syndrome Newsletter – November 2015
President’s Reportby Susan Hone Happy Fall everyone. This is my first newsletter report as President of the Barth Syndrome Foundation of Canada (BSFCa).2015 has been a year of significant change for BSFCa. The two major changes were to the Board of Directors (see article on Board changes pg. 3) and a new direction in our fundraising efforts, which meant after 10 years, no more
Research Study
OCTOBER 1, 2015 Dr. John Lynn Jefferies of Cincinnati Children’s Research Foundation is doing a research study concerning the assessment of quality of life, anxiety, and depression in Barth syndrome. Please consider the attached information and contact Dr. Jefferies directly if you decide to help.Research Study Information. Return to News Listings
2015 Request for Research Proposals
AUGUST 18, 2015 The Barth Syndrome Foundation, Inc. (BSF) and its international affiliates announce the availability of funding for basic science and clinical research on the natural history, biochemical basis, and treatment of Barth syndrome. There are two categories: IDEA grants for 1-2 years and DEVELOPMENT grants for 2-3 years with budgetary maximums of US $50,000 or $100,000, respectively. BSF's Research Grant Program allows
Annual General Meeting and Family Outreach
MAY 24, 2015 Our annual meeting was held recently during which families were updated on last year's activities, the research grants currently being funded, as well as fundraising plans and campaigns. After the business portion of the day, we had a fun afternoon of glow-in-the-dark mini golf followed by dinner.It was a great day, giving everyone the chance to catch-up and share ideas.
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