November 3, 2022<\/h4>\n
I hope this newsletter finds everyone well and getting back <\/span>to their previous <\/span>lifestyles before the global pandemic. <\/span>Although the pandemic is not <\/span>yet over, the world is adjusting <\/span>to living with it and the fear is <\/span>not as heightened as it was last <\/span>year at this time. <\/span>We still need <\/span>to be cautious as Barth <\/span>syndrome can cause <\/span>individuals to <\/span>be immunocompromised at times and those are the individuals who are most susceptible to the corona virus. <\/span><\/p>\n We continue to reach out and <\/span>connect with our Canadian <\/span>Barth families old and new. BSFCa hosted an outreach this summer in Calgary, AB. It <\/span>was part of the \u2018Barth Syndrome Stronger Together World Tour\u2019 being held this year <\/span>to reconnect with old friends and welcome new families. Read more about the <\/span>Canadian tour stop on page 5. Additional stops happened in the US, the Netherlands, <\/span>and the UK, with one more being planned for France.<\/span><\/p>\n We are once again sharing the funding of a research project with Barth Syndrome UK. This year\u2019s recipient is Borko Amulic, PhD, Lecturer (Assistant Professor), <\/span>University of Bristol, Bristol, UK. His research is on neutrophil dysfunction <\/span>in Barth syndrome.<\/span><\/p>\n Download the full newsletter here!<\/a><\/u><\/p>\n<\/div> Return to Newsletter Listings<\/a><\/b><\/u><\/p>\n<\/div>![](\"https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2022\/11\/2022_Newsletter_Screenshot-234x300.png\")
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