It is important to keep everyone–doctors, researchers, families, affected individuals as up-to-date as possible regarding programs and research sponsored by ourselves, our parent foundation, the Barth Syndrome Foundation, Inc., and other world-wide affiliates.<\/p>\n
Along with this website, a bi-yearly newsletter (Barth Syndrome Journal) is published by BSF Inc., to which we and the other affiliates submit articles. In order to keep our donors and Canadian families engaged and current about Canadian specific activities, we also have our own yearly bulletin. Contact us<\/u><\/a> if you would like to receive a hard copy, of either publication, please let us know, and we would be happy to mail them to you.<\/p>\n<\/div>