{"id":1419,"date":"2021-10-23T02:39:16","date_gmt":"2021-10-23T02:39:16","guid":{"rendered":"https:\/\/barthsyndrome.ca\/?page_id=1419"},"modified":"2023-06-12T14:40:13","modified_gmt":"2023-06-12T14:40:13","slug":"international-scientific-medical-family-conference","status":"publish","type":"page","link":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/","title":{"rendered":"International Scientific, Medical &#038; Family Conference"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container fusion-parallax-none nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-background-position:center top;--awb-background-blend-mode:darken;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:18%;--awb-padding-bottom:3%;--awb-background-image:linear-gradient(0deg, rgba(10,92,152,0) 66%,#0a5c98 100%),url(https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2021\/03\/BarthBackground.png);;--awb-background-size:cover;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:calc( 1140px + 0px );margin-left: calc(-0px \/ 2 );margin-right: calc(-0px \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column fusion-animated\" style=\"--awb-padding-bottom:50px;--awb-bg-position:center center;--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:0px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:0px;--awb-width-medium:100%;--awb-spacing-right-medium:0px;--awb-spacing-left-medium:0px;--awb-width-small:100%;--awb-spacing-right-small:0px;--awb-spacing-left-small:0px;\" data-animationType=\"fadeInUp\" data-animationDuration=\"1.0\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-text-color:#ffffff;--awb-font-size:75px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;font-size:1em;letter-spacing:-3px;--fontSize:75;line-height:1;\">International Scientific, Medical <br \/>&amp; Family Conference<\/h2><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-top:6%;--awb-padding-bottom:4%;--awb-background-color:rgba(247,235,249,0);--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:calc( 1140px + 0px );margin-left: calc(-0px \/ 2 );margin-right: calc(-0px \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-flex-column fusion-animated\" style=\"--awb-padding-bottom:20px;--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:25px;--awb-margin-bottom-large:0px;--awb-spacing-left-large:0px;--awb-width-medium:100%;--awb-spacing-right-medium:0px;--awb-spacing-left-medium:0px;--awb-width-small:100%;--awb-spacing-right-small:0px;--awb-spacing-left-small:0px;\" data-animationType=\"fadeInUp\" data-animationDuration=\"1.0\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p>After missing the last two conferences, we are happy to announce that the 2024 event in now in the planning stages.<\/p>\n<p style=\"text-align: center; \"><b data-fusion-font=\"true\" style=\"font-size: 27px; color: var(--awb-color5);\">July 29-Aug 3, 2024<\/b><\/p>\n<p style=\"text-align: center; \"><span data-fusion-font=\"true\" style=\"font-size: 22px; color: var(--awb-color6);\"><b>The Hyatt Regency Coconut Point Resort and Spa in Bonita Springs, Florida<\/b><\/span><\/p>\n<p><span style=\"background-color: var(--awb-bg-color-hover); color: var(--awb-text-color); font-family: var(--awb-text-font-family); font-size: var(--awb-font-size); font-style: var(--awb-text-font-style); font-weight: var(--awb-text-font-weight); letter-spacing: var(--awb-letter-spacing); text-align: var(--awb-content-alignment); text-transform: var(--awb-text-transform);\">The Barth Syndrome Foundation&#8217;s (BSF) biennial conferences bring affected families, research scientists, and clinicians together in one place at one time for a dual track meeting.<\/span><\/p>\n<p><b>Doctors<\/b> who might care for a single patient will have the opportunity to see well over 50 individuals with Barth syndrome at once; thereby, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also hear from scientific experts about the latest discoveries and upcoming potential treatment options.<\/p>\n<p><b>Scientists<\/b> will hear presentations on colleagues&#8217; recent work as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory. <\/p>\n<p><b>Families<\/b> and individuals with Barth syndrome have a unique opportunity to be seen by the world&#8217;s greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history, and even their own tissue in addition to learning from experts and from each other so that they can better advocate for themselves or their child(ren).<\/p>\n<ul>\n<li><u><a href=\"https:\/\/www.barthsyndrome.org\/newsevents\/conference\/conferenceprograms.html\" target=\"_blank\" rel=\"noopener noreferrer\">Click here<\/a><\/u> if you would like to take a look at previous conference brochures.<\/li>\n<li><u><a href=\"https:\/\/www.barthsyndrome.org\/newsevents\/videos.html\" target=\"_blank\" rel=\"noopener noreferrer\">Click here<\/a><\/u> to view the Scientific &amp; Medical Presentations, Family Sessions, Poster Corner, and Grand Rounds from previous conferences as well as other Educational videos and Meet Our Community <i>(People We Serve and Clinicians and Scientists)<\/i>.<\/li>\n<li><u><a href=\"https:\/\/www.barthsyndrome.org\/barthsyndrome\/videos\/webinars\/\" target=\"_blank\" rel=\"noopener noreferrer\">Click here<\/a><\/u> to view Webinar and Roundtable Recordings. <\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-3 fusion-flex-container fusion-parallax-none nonhundred-percent-fullwidth non-hundred-percent-height-scrolling fusion-animated\" style=\"--awb-background-position:center bottom;--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-padding-bottom:4%;--awb-background-image:linear-gradient(180deg, #ffffff 0%,rgba(231,204,182,0.49) 100%),url(https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2019\/10\/cta-background-mandala.jpg);;--awb-background-size:cover;--awb-flex-wrap:wrap;\" data-animationType=\"bounceInDown\" data-animationDuration=\"1.1\" data-animationOffset=\"top-into-view\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1185.6px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-2 fusion_builder_column_1_6 1_6 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:16.666666666667%;--awb-margin-top-large:0px;--awb-spacing-right-large:11.52%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:11.52%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-3 fusion_builder_column_2_3 2_3 fusion-flex-column fusion-animated\" style=\"--awb-padding-top:60px;--awb-padding-right:30px;--awb-padding-bottom:60px;--awb-padding-left:30px;--awb-overflow:hidden;--awb-bg-color:#ffffff;--awb-bg-color-hover:#ffffff;--awb-bg-image:linear-gradient(0deg, rgba(231,204,182,0.76) 0%,rgba(231,204,182,0) 100%);--awb-bg-size:cover;--awb-box-shadow:0px 10px 30px 0px rgba(204,176,146,0.88);;--awb-border-radius:12px 12px 12px 12px;--awb-width-large:66.666666666667%;--awb-margin-top-large:-30px;--awb-spacing-right-large:2.88%;--awb-margin-bottom-large:60px;--awb-spacing-left-large:2.88%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\" data-animationType=\"rubberBand\" data-animationDuration=\"1.7\" data-animationOffset=\"top-into-view\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-center fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top:-30px;--awb-margin-bottom:10px;--awb-margin-bottom-small:10px;--awb-font-size:60px;\"><h2 class=\"fusion-title-heading title-heading-center fusion-responsive-typography-calculated\" style=\"margin:0;font-size:1em;--fontSize:60;line-height:1;\">Donate please!<\/h2><\/div><div class=\"fusion-text fusion-text-2\"><p style=\"text-align: center;\">The Barth Syndrome Foundation of Canada is a completely volunteer, charitable foundation. We fund critical research and provide support and information to affected individuals, families, and medical professionals.<\/p>\n<\/div><div style=\"text-align:center;\"><a class=\"fusion-button button-flat fusion-button-default-size button-default fusion-button-default button-1 fusion-button-default-span fusion-button-default-type\" style=\"--button_text_transform:uppercase;\" target=\"_self\" href=\"https:\/\/barthsyndrome.ca\/donate\/\"><span class=\"fusion-button-text\">Click Here to DOnate<\/span><\/a><\/div><\/div><\/div><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-4 fusion_builder_column_1_6 1_6 fusion-flex-column fusion-no-small-visibility fusion-no-medium-visibility\" style=\"--awb-bg-size:cover;--awb-width-large:16.666666666667%;--awb-margin-top-large:0px;--awb-spacing-right-large:11.52%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:11.52%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><\/div><\/div><\/div><\/div>\n<\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"100-width.php","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>International Scientific, Medical &amp; Family Conference - Barth Syndrome Canada<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"International Scientific, Medical &amp; Family Conference - Barth Syndrome Canada\" \/>\n<meta property=\"og:url\" content=\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/\" \/>\n<meta property=\"og:site_name\" content=\"Barth Syndrome Canada\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/barthsyndromecanada\/\" \/>\n<meta property=\"article:modified_time\" content=\"2023-06-12T14:40:13+00:00\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"5 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/\",\"url\":\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/\",\"name\":\"International Scientific, Medical & Family Conference - Barth Syndrome Canada\",\"isPartOf\":{\"@id\":\"https:\/\/barthsyndrome.ca\/#website\"},\"datePublished\":\"2021-10-23T02:39:16+00:00\",\"dateModified\":\"2023-06-12T14:40:13+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/\"]}]},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/barthsyndrome.ca\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"International Scientific, Medical &#038; Family Conference\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/barthsyndrome.ca\/#website\",\"url\":\"https:\/\/barthsyndrome.ca\/\",\"name\":\"Barth Syndrome Foundation of Canada\",\"description\":\"Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome\",\"publisher\":{\"@id\":\"https:\/\/barthsyndrome.ca\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/barthsyndrome.ca\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/barthsyndrome.ca\/#organization\",\"name\":\"Barth Syndrome Foundation of Canada\",\"url\":\"https:\/\/barthsyndrome.ca\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/barthsyndrome.ca\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2021\/08\/News-featured.jpg\",\"contentUrl\":\"https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2021\/08\/News-featured.jpg\",\"width\":500,\"height\":500,\"caption\":\"Barth Syndrome Foundation of Canada\"},\"image\":{\"@id\":\"https:\/\/barthsyndrome.ca\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/barthsyndromecanada\/\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"International Scientific, Medical & Family Conference - Barth Syndrome Canada","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/","og_locale":"en_US","og_type":"article","og_title":"International Scientific, Medical & Family Conference - Barth Syndrome Canada","og_url":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/","og_site_name":"Barth Syndrome Canada","article_publisher":"https:\/\/www.facebook.com\/barthsyndromecanada\/","article_modified_time":"2023-06-12T14:40:13+00:00","twitter_card":"summary_large_image","twitter_misc":{"Est. reading time":"5 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/","url":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/","name":"International Scientific, Medical & Family Conference - Barth Syndrome Canada","isPartOf":{"@id":"https:\/\/barthsyndrome.ca\/#website"},"datePublished":"2021-10-23T02:39:16+00:00","dateModified":"2023-06-12T14:40:13+00:00","breadcrumb":{"@id":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/"]}]},{"@type":"BreadcrumbList","@id":"https:\/\/barthsyndrome.ca\/international-scientific-medical-family-conference\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/barthsyndrome.ca\/"},{"@type":"ListItem","position":2,"name":"International Scientific, Medical &#038; Family Conference"}]},{"@type":"WebSite","@id":"https:\/\/barthsyndrome.ca\/#website","url":"https:\/\/barthsyndrome.ca\/","name":"Barth Syndrome Foundation of Canada","description":"Enhancing the lives and outcomes of Canadian individuals and families affected by Barth syndrome","publisher":{"@id":"https:\/\/barthsyndrome.ca\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/barthsyndrome.ca\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/barthsyndrome.ca\/#organization","name":"Barth Syndrome Foundation of Canada","url":"https:\/\/barthsyndrome.ca\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/barthsyndrome.ca\/#\/schema\/logo\/image\/","url":"https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2021\/08\/News-featured.jpg","contentUrl":"https:\/\/barthsyndrome.ca\/wp-content\/uploads\/2021\/08\/News-featured.jpg","width":500,"height":500,"caption":"Barth Syndrome Foundation of Canada"},"image":{"@id":"https:\/\/barthsyndrome.ca\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/barthsyndromecanada\/"]}]}},"_links":{"self":[{"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/pages\/1419"}],"collection":[{"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/comments?post=1419"}],"version-history":[{"count":7,"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/pages\/1419\/revisions"}],"predecessor-version":[{"id":2215,"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/pages\/1419\/revisions\/2215"}],"wp:attachment":[{"href":"https:\/\/barthsyndrome.ca\/wp-json\/wp\/v2\/media?parent=1419"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}