{"id":1346,"date":"2021-10-22T02:22:30","date_gmt":"2021-10-22T02:22:30","guid":{"rendered":"https:\/\/barthsyndrome.ca\/?page_id=1346"},"modified":"2023-08-05T19:54:39","modified_gmt":"2023-08-05T19:54:39","slug":"families-and-barth-syndrome-individuals","status":"publish","type":"page","link":"https:\/\/barthsyndrome.ca\/families-and-barth-syndrome-individuals\/","title":{"rendered":"Families and Barth Syndrome Individuals"},"content":{"rendered":"

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Families and Barth
Syndrome Individuals<\/h2><\/div><\/div><\/div><\/div><\/div>

One of the most important functions of the Barth Syndrome Foundation of Canada is to provide education and support to families and affected individuals.<\/h2><\/div><\/div><\/div>
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The goal of our family program is to improve the quality of life for people and families affected by Barth syndrome. We provide a diverse and supportive community that brings families together, both within Canada and with families and resources around the world. The program includes information and resources as well as advocacy assistance.<\/p>\n

If you or someone you know is newly diagnosed with Barth syndrome (BTHS), you are no longer alone<\/b><\/span>. This Foundation was established, because there was limited knowledge about this very complex disorder. For years, families and individuals affected by Barth syndrome had nowhere to turn to for help and support. We have changed this.<\/p>\n

We are not only active volunteers of this organization, we are families of someone affected by BTHS, and our experiences will be similar to yours.<\/p>\n

We also respond to inquiries from professionals, organizations and students regarding Barth syndrome or the Barth Syndrome Foundation of Canada.<\/p>\n