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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."


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International Scientific, Medical & Family Conference

The Barth Syndrome Foundation's (BSF) biennial conferences bring affected families, research scientists, and clinicians together in one place at one time for a dual track meeting.  

Doctors who might care for a single patient will have the opportunity to see well over 50 individuals with Barth syndrome at once; thereby, gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also hear from scientific experts about the latest discoveries and upcoming potential treatment options.

Scientists will hear presentations on colleagues' recent work as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory. 

Families and individuals with Barth syndrome have a unique opportunity to be seen by the world's greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history, and even their own tissue in addition to learning from experts and from each other so that they can better advocate for themselves or their child(ren).

2022 Conference Update from BSF July 19, 2021:

Save the date for the 2022 International Barth syndrome Scientific, Medical, and Family Conference!

We cannot wait to be together again July 18-23, 2022 at the Hilton Clearwater Beach, Florida.

More info to come, but we wanted YOU to be the first to know! Registration and reservations opening up Fall 2021.

Please check the BSF conference page regularly for more details.


If you would like to take a look at previous conference brochures, click here

Click here to view the Scientific & Medical Presentations, Family Sessions, Poster Corner, and Grand Rounds from previous conferences as well as other Educational videos and Meet Our Community (People We Serve and Clinicians and Scientists).

Click here to view Webinar and Roundtable Recordings. 


Privacy and Disclaimer

Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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86102 2002 RR0001

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