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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."

International Scientific, Medical & Family Conference

The Barth Syndrome Foundation's (BSF) biennial conferences bring affected families, research scientists, and clinicians together in one place at one time for a dual track meeting.  

Doctors who might care for a single patient will have the opportunity to see well over 50 individuals with Barth syndrome at once, thereby gaining a greater understanding of the breadth of the disorder. Additionally, they will be able to compare notes with other physicians and also hear from scientific experts about the latest discoveries and upcoming potential treatment options.

Scientists will hear presentations on colleagues' recent work, as well as learn from and have a chance to collaborate with experts in other fields. Furthermore, they will gain insight into the clinical aspects of the disorder and witness the medical ramifications of what they discover in the laboratory. 

Families and individuals with Barth syndrome have a unique opportunity to be seen by the world's greatest experts in Barth syndrome, contributing directly to the search for a cure by providing their information, their health history and even their own tissue as well as to learn from experts and from each other so that they can better advocate for themselves or their children.

 

The 2018 conference will take place at the Hilton Clearwater Beach in Florida, USA; July 16-21,2018. Please come back often for more information, and registration procedures.

 

Click this link to view the Scientific & Medical Presentations from the 2016, 2014, 2012 and 2010 conferences. 


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Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

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