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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."

Barth Syndrome Foundation of Canada Newsletters

It is important to keep everyone--doctors, researchers, families, affected individuals as up-to-date as possible regarding programs and research sponsored by ourselves, our parent foundation, the Barth Syndrome Foundation, Inc., and other world-wide affiliates. Along with this website, a bi-yearly newsletter (Barth Syndrome Journal) is published by BSF Inc., to which we and the other affiliates submit articles. In order to keep our donors and Canadian families engaged and current about Canadian specific activities, we also have our own yearly bulletin. If you would like to receive a hard copy, of either publication, please let us know, and we would be happy to mail them to you. Contact Us.


Canadian Newsletter March 2020 

Canadian Newsletter November 2018

Canadian Newsletter November 2016

Canadian Newsletter November 2015

Canadian Newsletter September 2014 

Canadian Newsletter September 2013

Canadian Newsletter September 2012

Canadian Newsletter December 2011 

Canadian Newsletter March 2009



To view Barth Syndrome Journals, please follow this link.

Privacy and Disclaimer

Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

Registered Charity Number:
86102 2002 RR0001

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