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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."


NOVEL CORONAVIRUS 2019 (COVID-19) Precautions

March 13, 2020

Information from BSF, Inc.

Families and friends in our global Barth community,

During this very challenging time as the world reacts to the COVID-19 pandemic, we at BSF are working diligently to support our families and individuals with Barth syndrome. See the following important links for further information:

Prevention Guidelines for people at risk from the CDC.

New resource page from BSF: COVID-19 Information and Precautions.

Resource page from the Government of Canada: Coronavirus disease (COVID-19) 


BSF is now hosting a series of open, weekly support groups online via videoconference in response to the COVID-19 virus outbreak. To RSVP, click here. To join the meeting, click here.

Should the support group become full, an additional group will be created and announced on Facebook and BSF's private listserv. If you need more information, please email Shelley Bowen, Director of Family Services.

BSF will continue to monitor guidance from the CDC and the WHO with regards to the 2020 Conference. If you are planning to attend, be sure to register so that organizers can keep you up-to-date in the event of changes. Also, check here


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