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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."


NOVEL CORONAVIRUS 2019 (COVID-19) Precautions Updated

March 13, 2020

UPDATED March 31, 2020 

Information from BSF, Inc.

Families and friends in our global Barth community,

During this very challenging time as the world reacts to the COVID-19 pandemic, we at BSF are working diligently to support our families and individuals with Barth syndrome. See the following important links for further information:

Prevention Guidelines for people at risk from the CDC.

New resource page from BSF: COVID-19 Information and Precautions.

BSF continues to update the link above, so be sure to check the growing list of Additional Resources. 

Resource page from the Government of Canada: Coronavirus disease (COVID-19) 

BSF has also added a Youtube video from Richard E D'Alli, M.D., MEd, ScM, Associate Professor of Psychiatry in the Department of Pediatrics, University of Florida with tips for recognizing anxiety in a child and strategies: Stress and COVID-19

Also, check out Facebook for both BSFCa and BSF



BSF is now hosting a series of open, weekly support groups and yoga online in response to the COVID-19 virus outbreak. Check out the BSF Support Group Page for more information and available groups.

If you need more information, please email Shelley Bowen, Director of Family Services.

BSF has made the decision to postpone the 2020 Conference. More information will be made available as soon as possible. 


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