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Enhancing the lives and outcomes
of Canadian individuals and families
affected by Barth syndrome."


Virtual 5K Run 2020 UPDATED

February 29, 2020



Although registration has now ended, please consider donating to our foundation. We are a purely volunteer organization working on behalf of individuals with this rare disorder. 

To donate, please see the CanadaHelps link 

For updates, please see Facebook link 

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Privacy and Disclaimer

Barth Syndrome Foundation of Canada does not endorse any drugs, tests, or treatments that we may report.

This website is for informational purposes, always check with your physician before adopting any medical treatment.

Registered Charity Number:
86102 2002 RR0001

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